Trisomy Oz Prenatal Support

Trisomy Oz is neither 'pro choice' nor 'pro life'. We are pro CURRENT and ACCURATE information. No parent should be asked to make decisions for their unborn child without it.

Welcome to Trisomy Oz ...

A website inspired by the life of Daniel Sean Sheffield 7.7.07 9.7.07.

Dedicated to all those with trisomy 13 and similar disorders, whether they be long-term survivors or treasured memories.

And to any parent who has ever received a difficult prenatal diagnosis.

Who we are

In March 2007 our second son Daniel was prenatally diagnosed with trisomy 13, a condition considered to be ‘not compatible with life’. We have experienced first-hand the many difficult choices confronting those who receive this type of prenatal diagnosis, and understand that in many cases, parents are asked to make these choices without accurate information or adequate emotional support. We aim to change this.

We offer non-directive information and support to ALL parents confronting

a difficult prenatal diagnosis, regardless of whether they are planning to terminate or continue their pregnancy. Most of all, we aim to provide links to current and accurate information during the decision-making stage.

What is Trisomy 13?

Trisomy 13 is a chromosomal disorder which occurs at the time of conception, when the mother's egg and the father's sperm each contribute 23 chromosomes to the developing baby's cells. Each cell should have a total of 46 chromosomes. Sometimes either the egg or the sperm contributes an extra chromosome to the embryo, resulting in a third chromosome, rather than the usual pair. A baby diagnosed with trisomy 13 will have an additional copy of the number 13 chromosome in his or her cells. More...


Daniel's Book

Our time with Daniel inspired me

to write a book to raise awareness

of conditions like trisomy 13, and

increase support and understanding

for parents who face a difficult

prenatal diagnosis. Find out more...


More...   NEW - View Daniel's first birthday montage.

NEW

Opportunity to share your experience and contribute to informing future care.

University of Melbourne Study into continuing a pregnancy following prenatal diagnosis of a life-limiting condition.

Click here for details.

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